Home > Uncategorized > World Cerebral Palsy Day 2013

World Cerebral Palsy Day 2013

Today’s the day! What is World Cerebral Palsy Day? Well, this sums it up. “World CP Day is a global innovation project to change the world for people living with cerebral palsy and their families. It is designed to gather ideas from people around the world and make the best of those ideas a reality.
The project is led by a group of non-profit cerebral palsy charities, and supported by organisations in over 30 countries.”
(from http://en.worldcpday.org/about/)

You can find the World CP Day on FaceBook also, and a few weeks ago, they posted an interesting informational graphic.

CP Info Graphic

(photo credit – http://en.worldcpday.org/about/)

I don’t know how big this picture will be on the blog, so go to this website to blow it up. http://en.worldcpday.org/assets/Uploads/about/WorldCPDayCP-Infographic.pdf

I found this information interesting, particularly all the statistics at the bottom. I usually describe my CP as ataxic, but I’ve recently discovered that I was never diagnosed with any particular type. Looking through the various types of CP, I’m leaning more toward the spastic description. My muscles and tendons are very tight and stiff. I also identify with the ataxic type because i do have bad balance. I don’t think my “sense of positioning in space” is impacted at all. Not really sure what that means, depth perception maybe?

The parts of me that are impacted are my right arm and left leg. My gross motor skills are technically level 2, but right now, I act more like a level 4. I’m working on that though. Get myself back to a level 2.

My manual ability is OK. I have no problems with eating, dressing, writing, or catching a ball. Although I do get hit in the head by a ball if I’m not expecting someone to throw it at me. When people start playing catch, I pay very close attention to who is throwing it. Been hit in the head by flying objects a lot over the years. The only real issue I have with getting dressed is buttons. I have a hard time with really tiny button on shirts. Also, the button has to be on correct side of the pants for me (the right side in my case).

I can walk and I can talk. I do experience pain from time to time, but it’s not as bad as is was a year ago before I started going to the chiropractor regularly. I have very tight muscles in my upper back and neck that are a pain frequently. I don’t have epilepsy, don’t have a behavior disorder, and I don’t have an intellectual impairment. I have no vision problems (almost 39 and still don’t wear glasses). I thankfully don’t have bladder control problems or a saliva control problem. And I don’t really have any sleep disorders other than the occasional hard time getting to sleep.

So, there you have it. Me in a nutshell. Not too bad. I got very lucky. My CP could have been a whole lot worse. I was lucky enough to have parents who didn’t treat me any different from my older sister. If I couldn’t do something, I’d get creative and find a way to get it done (still do that).

CP doesn’t get worse with age, although the impact on the body (joints, tendons and such) can deteriorate if they’re not worked. Walking ability also suffers if it’s not utilized often. That’s why I’m keeping up with exercise and trying to regain my confidence with walking.

I hope this information helps anyone out there wanting to know more about CP. Every case of CP is totally different. There are a lot of people with cerebral palsy that are trying to get more awareness of CP out there and help people understand this disability more. Here are links to a few of the people I keep up with whether it’s on FaceBook or through their blogs.

Charisse – FaceBook Page and YouTube Channel

CP Family Network – Website and FaceBook Page

Tina’s Blog – Living With Cerebral Palsy

Amelia’s Blog – Life In The Blue Ridges

Have a great day and keep moving!!

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